The National Center for Fatality Review and Prevention began a Data Quality Initiative under the leadership of Patricia Schnitzer, Ph.D. Its goal is to improve the quality and consistency of the data entered into the Case Reporting System in an effort to improve usefulness of the data at the state and national level for identifying prevention strategies and monitoring the effectiveness of prevention measures that have been implemented.
The Initiative, which began in the Fall of 2015, has the following six components:
A Data Quality Initiative Webinar (Access code “Quality” -Firefox or Chrome suggested) was presented on June 23, 2016 to all users of the CDR Case Reporting System. This webinar introduced the Data Quality Initiative and presented some case scenarios in an interactive format using the Guidance. The slides are also available.
A volunteer workgroup identified PRIORITY variables for monitoring data quality. A subset of CORE variables were also identified. These priority and core variables were used as the basis for a Data Quality Guidance and Data Quality Summary.
A Data Quality Guidance for the Case Reporting System was developed to help users understand some of the trickier sections of the report tool and provide additional detail for the priority variables. The Guidance has been incorporated into the Data Dictionary as well. A Frequently Asked Questions document was also created.
A Data Quality Summary was developed for states with at least 30 deaths in the calendar year; 2014 data was used for the first (baseline) annual report. This Summary presents the percent of missing and unknown responses for the priority variables using the national data along-side state-specific numbers. The 2014 Summary was sent to CDR state coordinators with their state’s data. A pre-recorded webinar (access code ‘Quality’ -Firefox or Chrome suggested) more fully explains how to read the Summary and its potential uses; slides of the webinar are also available. In September 2018, the third annual Data Quality Summary was sent to states. This report included the states’ 2015 and 2016 data, as well as national data from 2016. The National Data Quality Summary shows the template and the data from 2015 and 2016.
A Guidance for Improving Child Death Review Data Quality was compiled and published in October 2017 as a resource to state Child Death Review programs for monitoring and improving the quality of their data entered in the CDR-CRS.
Technical Assistance related to improving data quality, developing a data quality monitoring program, or refining existing data quality efforts is available to any state, upon request. Assistance may be provided by telephone or in person. Please contact Center staff to request assistance.