Data Dissemination Policies and Guidelines

The National Center has developed policies and guidelines for researchers interested in using de-identified National Fatality Review-Case Reporting System (NFR-CRS) data. There are countless topics researchers could potentially investigate to enhance current knowledge about how to keep infant and kids safe and alive. It is important to know, however, that there are limitations on the type of data that can be released and on the way the data can be analyzed and interpreted. For example, because the NFR-CRS includes only the deaths of infants and children reviewed by fatality review teams and not all infant and child deaths, the data are not population-based and cannot be used to calculate rates. Despite these limitations, the NFR-CRS is a rich source of comprehensive information on infant and child deaths not available through other sources.

Research applications are reviewed by a committee of experts with respect to the quality of the research questions, proposed methodology and consistency with the fatality review mission. Only researchers affiliated with institutions with IRB capacity may apply. There may be a fee for obtaining a dataset.

Application and Guidelines:

NFR-CRS Data Dissemination brochure

Data Dissemination Policies and Guidelines for Requesting Access to De-identified Data from the National Fatality Review-Case Reporting System

NFR-CRS Application for De-identified Dataset

Additional materials for applicants:

Archive of June 2, 2021 webinar (passcode NCFRP)
Using NFR-CRS Data for Research-Tips for writing a successful proposal
Using NFR-CRS Data for Research-Sample Application Fire deaths (annotated and highlighted)
Using NFR-CRS Data for Research-What makes the Fire deaths sample a good proposal
Using NFR-CRS Data for Research-Sample variable list
Using NFR-CRS Data for Research-Example Shell Table 1
Using NFR-CRS Data for Research-Example Shell Table 2

Journal articles and reports utilizing NFR-CRS data