The National Center for Fatality Review and Prevention is the technical support and data center serving Child Death Review (CDR) and Fetal and Infant Mortality Review (FIMR) programs across the country. The National Center offers a wide variety of services that are available via site visits, email, and telephone.
- Technical assistance to support teams to develop, implement and sustain prevention-focused CDR processes.
- Maintenance of the National Fatality Review-Case Reporting System (NFR-CRS), a database into which fatality review teams enter the circumstances of the individual deaths they review.
- Training for state and local teams.
- Strategic planning and program development for state and local teams.
- Consultation to coordinate with other reviews, FIMR and CDR collaboration, domestic violence, serious injury, maternal mortality, elder/vulnerable adult fatality reviews, Citizen Review Panels, and others.
- Support for the network of CDR program leaders.
- Listserv that reaches state CDR coordinators and leaders.
- Linkage of CDR programs to state and national maternal and child health and injury programs.
Contact the National Center
- SUID and SDY Case Registry
As part of the Sudden Unexpected Infant Death (SUID) and Sudden Death in the Young (SDY) Case Registry, CDC’s Division of Reproductive Health supports SUID monitoring programs in 22 states and jurisdictions, covering about 1 in 3 SUID cases in the United States. The SUID and SDY Case Registry builds on child death review programs and uses the National Center for Fatality Review and Prevention’s Case Reporting System, bringing together information about the circumstances associated with SUID and SDY cases, as well as information about investigations into these deaths. Participating states and jurisdictions use data about SUID and SDY trends and circumstances to develop strategies to reduce future deaths.
CDC and the National Institutes of Health (NIH) collaborate on the SDY component of the SUID and SDY Case Registry, which expands the population of the previously established SUID Case Registry to include children and adolescents. The SDY component of the Case Registry was created to increase the understanding of the prevalence, causes, and risk factors for infants, children, and young adults who die suddenly and unexpectedly and to inform strategies to prevent future deaths. In addition, the CDC and NIH fund a Data Coordinating Center (DCC) to monitor the SDY component data quality, and provide training and technical assistance on consenting families for use of their child’s DNA in the Registry for future research use and/or DNA banking. The DCC also subcontracts to a biorepository, which extracts and stores DNA for research and family DNA banking.
On average between 4-8 U.S. children die at the hands of their caregivers each day. In order to combat this devastating tragedy, the U.S. Department of Justice, Office of Justice Programs, Office for Victims of Crime has funded a demonstration initiative to develop multidisciplinary strategies and responses to address serious or near-death injuries as a result of child abuse or neglect and to reduce the number of child fatalities. The efforts will be responsive to the 21st Century Child Welfare System as envisioned by the U.S. Commission to Eliminate Child Abuse and Neglect Fatalities and will result in models for coordinated responses. Within Our Reach, an office at the Alliance for Strong Families and Communities supported by Casey Family Programs, serves as the national technical assistance provider to the five demonstration sites. The five sites are St. Francis Hospital in Hartford, Connecticut; Cook County Health, Illinois; Indiana State Department of Health; Michigan Department of Health and Human Services; and Sacramento County’s Child Abuse Prevention Council. The National Center is honored to serve as part of a multiagency technical assistance team in supporting this important work. Learn more in the Child Safety Forward Summary PDF.